We recently receieved the news that the 9 year old sister of one of our players, Declan, has been diagnosed with a rare brain disorder, BPAN.

Hermione, who was first diagnosed with epilepsy, autism and severe speech and language difficulties, continued to be unwell and further tests revealed she has Propeller Accumulation Neurodegeneration (BPAN).

To help raise awareness and funds to research into BPAN, Declan and family have launched a new charity - https://www.hopeforhermione.com

A Just Giving page has also been set up yo kick start the fundraising for crucial research into the rare disorder which includes dementia and Parkinson's type symptoms and a reduced life expectancy.

Speaking of the recent life changing news for Declan and his family, Hermione's mum, Caryn said;

"Although we have received the worst news possible, we still can make a change and have something good come out of all the tears."

Any support from our #EMCFAMILY and wider community would be greatly received. 

CLICK HERE FOR THE JUST GIVING PAGE

#HOPEFORHERMIONE #DECLAN #EMCFAMILY #BPAN #AWARENESS #RESEARCH